So I am still here. Life has just kicked my butt lately, and other than IG I have not been around. We are just hangin here livin real life. Swimmin in the hot weather ( kids not me) and getting our cute little buns back in school
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This Summer has not really been too fun for me or my kids. I am alive and Kicking and I think that's what matters most. This has been one bumpy ride and I am afraid it's not even close to slowing down yet.
I met both my oncologists Medical and Radiological and things were explained better. My tumor is a Sarcoma(A bone Cancer)I am told I am an enigma. My case is rare, very, very rare. The tumor was in large benign. A giant cell tumor. Confused? Join the club.I am being studied. I am not sure how special that makes me, I could do with out special, but since I am already here....I was sent for a PET scan to see if I have Cancer anywhere else. I DO NOT. My PET scan showed there are left over cells. If those cells are not killed, zapped, fried, whatever you want to call it, I will grow another tumor. NO THANKS!! I was told I would need 5 weeks of radiation therapy. That is every week day for 5 weeks. I am in week two and just barely starting to feel it's effects. Sadly the side effects STINK. My just healing body will be in essence burned and inflamed from the inside out. I will be in pain again and will have a temporary case of pleurisy. Which means every breathe I take will hurt. It bakes the outside of your skin like a wicked sunburn. Fatigue is a side effect and other not fun things. I have cried a lot of tired, frustrated tears. I have good days where I don't let it get to me and then some days where I want to crawl in a deep dark hole and hide. They found a nodule on my thyroid (not related.)I went for an ultrasound which showed there are actually two. They are not to overly big by nodule standards. They are not small though either, but considering my family history. My Mom had Thyroid Cancer and my Dad's thyroid shut down. I also have a propensity for a raspy 1 900 voice (he he) and I lose my voice a little too much I was the lucky (sarcasm) recipient of a double thyroid biopsy yesterday afternoon. I will know the results hopefully Friday morning. It was as bad as I imagined it. I am tired of hurting and being poked. That doesn't matter. I don't have an option to ignore these things. I see others every day at the Cancer Center who have it worse, but that does not make my pain any easier to live with. I get up every day and push through. I have no other choice. I enjoy my kids, and our little baby and I try not to let it rule my life. I have the occasional pity party day and then pick myself up again. This will all be a not so pleasant memory one day. At least this intense part. I will, like I said be watched for other tumors for years to come and radiation therapy can cause secondary cancer. I choose to be as positive as I can. I can't dwell on the what ifs and could be's. I just do my best to take it one day at a time and deal with what comes the best I can.
9 comments:
proof once more of the superwoman you are to so many. Thinking of and praying for you every single day!!!!
I was so happy to see a post from you! Glad to know you are alive and kicking, although I am sorry about all the health issues.
Prayers and hugs!
I hate that you have to go through this. I know what it's like to be in the middle of something so all-consuming and just wishing you could fast-forward until it's all a memory. Still keeping you in my prayers. You can do this. And it's okay to have a pity party every once in awhile so don't beat yourself up when you do. Love ya.
You're constantly in my prayers. Thanks for the update.
sounds like you have the right perspective...real, not Pollyanna, but not bitter or negative, either.
When things such as this hit, I always ask...'hmmm, wonder how long this "learning" experience is going to last?"
It's hard to carry one in pain, when others are relying on you.
Glad you are going to stick around awhile. :)
Hugs lady!I wish you didn't have to do it. Keep on keeping on. One day at a time. It's all you can do. Someday it wall all be a.hideous memory. Enjoy the little things and just keep swimming. Fingers crosses the biopsy comes back negative.
The kids look super cute. Love your pics and love following you on IG.
I am glad that you finally posted again. I have been worried about you. I am going to friend request you on fb so that I can keep in touch.
I am so sorry that you have to go through this. I love your realism and positive attitude.
Hugs.
Karie
I'm so sorry you are having to go through all of this. Your attitude is amazing though. We will keep praying for you. Hugs!
Oh my oh my oh my. What a roller coaster of a ride your life has taken. We love you and think about you and pray for you! I wish there was something MORE I could do.
Joy
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